Ética en la consulta:
Las voluntades anticipadas

bibliografía

1. Barnett TJ. Living Wills and More. Everything You Need to Ensure That All Your Medical Wishes Are Followed. Nueva York: John Wiley and Sons, Inc.; 1992.
2. Beauchamp TL, Childress JF. Principios de ética biomedical. Barcelona: Masson; 1999.
3. Berger AS. When Life Ends. Legal Overviews, Medicolegal Forms, and Hospital Policies. Westport, Connecticut: Praeger; 1995.
4. Betancor JT, Arnau J. Eutanasia, testamento vital y el nuevo código deontológico de Catalunya. Quadern CAPS 1997; 26: 20-27.
5. Buchanan AE, Brock DW. Deciding for Others. The Ethics of Surrogate Decision Making. Cambridge: Cambridge University Press; 1990.
6. Cattorini P. Cap. 3: Direttive anticipate del malato. Pro e contro. En: La morte offesa. Espropriazione del morire ed etica della resistenza al male. Bolonia: Edizioni Dehoniane Bologna; 1996. p. 97-132.
7. Collins ER, Weber D., The Society for the Right to Die. The Complete Guide to Living Wills. How to Safeguard Your Treatment Choices, Nueva York: Bantam Books; 1991.
8. Cortina A. Primera parte: El ethos: el carácter moral de las personas y las profesiones. En Arroyo Gordo MP, coordinadora. Ética y legislación en enfermería. Análisis sobre la responsabilidad profesional. Madrid: McGraw-Hill-Interamericana de España; 1996. p. 1-68.
9. Couceiro A., editora. Ética en cuidados paliativos. Madrid: Triacastela; 2004.
10. Doukas DJ, Reichel W. Planning for Uncertainty. A Guide to Living Wills and Other Advance Directives for Health Care. Baltimore: The Johns Hopkins University Press; 1993.
11. Flynn EP. Your Living Will. Why, When and How to Write One. Nueva York: Citadel Press; 1992.
12. Gafo J., editor. Bioética y religiones: el final de la vida, Madrid: Universidad Pontificia de Comillas; 2000.
13. Gracia D. Como arqueros al blanco. Estudios de bioética. Madrid: Triacastela; 2004.
14. Gracia D., Júdez J., editores. Ética en la práctica clínica. Madrid: Fundación de Ciencias de la Salud / Triacastela; 2004.
15. Hackler Ch, Moseley R, Vawter DE., editors. Advance Directives in Medicine, Nueva York: Praeger Publishers; 1989.
16. King NMP. Making Sense of Advance Directives. Revised Edition. Washington, D.C.: Georgetown University Press; 1996.
17. Lynn J. Why I Don't Have a Living Will. Law, Medicine & Health Care 1991 primavera-verano; 1 (1-2): 101-104.
18. Martín Delgado, M.C. Voluntades anticipadas. En Cabré Pericas, Ll., coordinador. Medicina crítica práctica. Decisiones terapéuticas al final de la vida, Barcelona: Edikamed; 2003. p. 41-49.
19. May AT. Autonomie und Fremdbestimmung bei medizinischen Entscheidungen für Nichteinwilligungsfähige. Münster: Lit; 2001.
20. Romeo Casabona CM. Los testamentos biológicos y el rechazo de los tratamientos vitales. En Urraca S., editor. Eutanasia hoy. Un debate abierto, Madrid: Noesis; 1996. p. 249-269.
21. Sádaba J. Principios de bioética laica, Barcelona: Gedisa; 2004.
22. Sánchez MA. Los testamentos vitales y la planificación anticipada de tratamientos: presupuestos conceptuales y limitaciones prácticas. En: Sarabia y Álvarezude J, De los Reyes M., coordinadores, Asociación de Bioética Fundamental y Clínica. La bioética en la encrucijada. I Congreso Nacional. Madrid 1996. Madrid: Zeneca-Farma; 1997. p. 135-146.
23. Sass HM, Veatch RM, Kimura R, editors. Advance Directives and Surrogate Decision Making in Health Care. United States, Germany, and Japan. Baltimore: The Hopkings University Press; 1998.
24. Simón Lorda P, Barrio Cantalejo, IM. ¿Quién decidirá por mí? Ética de las decisiones clínicas en pacientes incapaces. Madrid: Triacastela; 2004.
25. Siurana JC. La idea de sujeto en la ética del discurso de Karl-Otto Apel aplicada al problema de las directrices anticipadas en al ámbito de la ética biomédica. Tesis Doctoral presentada en 2001, edición en formato CD. Valencia: Publicaciones de la Universidad de Valencia; 2005.
26. Siurana JC. Voluntades anticipadas. Una alternativa a la muerte solitaria. Madrid: Trotta; 2005.
27. The Hastings Center. The Goals of Medicine. Setting New Priorities. An International Project of The Hastings Center. Suplemento especial. Hastings Center Report 1996 noviembre-diciembre; 26 (6): S1-S27.
28. VV.AA. Practicing the PSDA. Suplemento especial. Hastings Center Report 1991 septiembre-octubre; 21 (5).

Cf. Violeta Mazo, "Pautas para un final digno", Cinco Días, 19 de noviembre de 2004.
Cf. Pablo Simón e Inés Mª Barrio, ¿Quién decidirá por mí? Ética de las decisiones clínicas en pacientes incapaces, Triacastela, Madrid, 2004.
Otra definición interesante puede encontrarse en David John Doukas y William Reichel, Planning for Uncertainty. A Guide to Living Wills and Other Advance Directives for Health Care, The Johns Hopkins University Press, Baltimore, 1993, p. 1.
Una distinción similar, pero usando otros términos y otra manera de definirlos, la encontramos en Hans-Martin Sass, "Advance directives", en Ruth Chadwick (ed.), Encyclopedia of Applied Ethics. vol. 1, Academic Press, San Diego, 1998, p. 41.
The Hastings Center, "The Goals of Medicine. Setting New Priorities. An International Project of The Hastings Center", Suplemento especial, Hastings Center Report, vol. 26, nº 6, noviembre-diciembre, 1996, pp. S1-S27.
Cf. Tom L. Beauchamp y James F. Childress, Principios de ética biomédica, Masson, Barcelona, 1999.
Diego Gracia, "Cuestiones de vida o muerte. Dilemas éticos en los confines de la vida", en Fundación de Ciencias de la Salud, Morir con dignidad. Dilemas éticos en el final de la vida. Actas de la Jornada organizada por la Fundación de Ciencias de la Salud y celebrada el 25 de octubre de 1995, Doce Calles, Madrid, 1996, p. 135.
Carlos María Romeo Casabona, "Los testamentos biológicos y el rechazo de los tratamientos vitales", en Salvador Urraca (ed.), Eutanasia hoy. Un debate abierto, Noesis, Madrid, 1996, p. 268.
Cf. Silva-Ruiz, Pedro F., "El derecho a morir con dignidad y el testamento vital", Boletín de Información. Ministerio de Justicia, vol. 46, nº 1651, 1992, pp. 129-141 (5677-5689).
Arnd T. May, "Betreuungsrecht und Selbstbestimmung am Lebensende", Zentrum für Medizinische Ethik. Medizinethische Materialien, nº 117, septiembre, 1998, p. 49.
Peter A. Singer, "Advance Directives in Palliative Care", Journal of Palliative Care, vol. 10, nº 3, otoño, 1994, p. 111.
David John Doukas y William Reichel, Planning for Uncertainty. A Guide to Living Wills and Other Advance Directives for Health Care, op. cit., p. 2.
Valerio Pocar, Filippo D'Ambrogi y Luciano Orsi, "Note illustrative sulla proposta di legge", en Consulta di Bioetica, "Proposta di legge sul consenso informato e sulle direttive anticipate", Bioetica. Rivista interdisciplinare, vol. 6, nº 2, 1998, p. 315.
Linda L. Emanuel, Ezekiel J. Emanuel, John D. Stoeckle, Lacinda R. Hummel y Michael J. Barry, "Advance Directives. Stability of Patients' Treatment Choices", Archives of Internal Medicine, vol. 154, 24 de enero, 1994, p. 209.
Rita Kielstein y Hans-Martin Sass, "Wertanamnese und Betreuungsverfügung. Instrumente zur Selbstbestimmung des Patienten und zur Entscheidungshilfe des Arztes und Betreuers", Zentrum für Medizinische Ethik. Medizinethische Materialien, vol. 81, 3ª ed. revisada, julio, 1995, p. 14.
John La Puma, "Are Advance Directives the Answer for the Frail Elderly?", en Ellen Olson, Eileen R. Chichin, Leslie S. Libow (eds.), Controversies in Ethics in Long-Term Care, Springer Publishing Company, Nueva York, 1995, p. 2.
Hans-Martin Sass, "Advance directives", en Ruth Chadwick (ed.), Encyclopedia of Applied Ethics. Volume 1, op. cit., p. 42.
Kevin M. McIntyre, Editorial: "On Advancing Advance Directives. Why Should We Believe the Promise?", Archives of Internal Medicine, vol. 155, 27 de noviembre, 1995, p. 2272.
Harry M. Kuitert, Cap. 17: "Die schriftliche Willenserklärung", Der gewünschte Tod. Euthanasie und humanes Sterben, Gütersloher Verlagshaus Gerd Mohn, Gütersloh, 1991, p. 129.
Terry J. Barnett, Living Wills and More. Everything You Need to Ensure That All Your Medical Wishes Are Followed, John Wiley and Sons, Inc., Nueva York, 1992, p. 12.
Peter A. Singer, "Advance Directives in Palliative Care", Journal of Palliative Care, vol. 10, nº 3, otoño, 1994, p. 114.
Cf. Rita Kielstein y Hans-Martin Sass, "Wertanamnese und Betreuungsverfügung. Instrumente zur Selbstbestimmung des Patienten und zur Entscheidungshilfe des Arztes und Betreuers", Zentrum für Medizinische Ethik. Medizinethische Materialien, vol. 81, 3ª ed. revisada, julio, 1995, pp. 1-31.
Christopher V. Chambers, James J. Diamond, Robert L. Perkel y Lori A. Lasch, "Relationship of Advance Directives to Hospital Charges in a Medicare Population", Archives of Internal Medicine, vol. 154, 14 de marzo, 1994, p. 541.
Lawrence J. Markson, James Fanale, Knight Steel, Donald Kern y George Annas, "Implementing Advance Directives in the Primary Care Setting", Archives of Internal Medicine, vol. 154, 24 de octubre, 1994, p. 2321.
Brendan M. Reilly, Michael Wagner, C. Richard Magnussen, James Ross, Louis Papa y Jeffrey Ash, "Promoting Inpatient Directives About Life-Sustaining Treatments in a Community Hospital. Results of a 3-Year Time-Series Intervention Trial", Archives of Internal Medicine, vol. 155, 27 de noviembre, 1995, p. 2317.
Diego Gracia, "Cuestiones de vida o muerte. Dilemas éticos en los confines de la vida", en Fundación de Ciencias de la Salud, Morir con dignidad, op. cit., p. 136.
Cf. Muriel R. Gillick, "A Broader Role for Advance Medical Planning", Annals of Internal Medicine, vol. 123, nº 8, 15 de octubre, 1995, pp. 621-624.
Tracey Dare, "Whose life is it anyway? Issues surrounding end-of-life decisions in intensive care", Nursing in Critical Care, vol. 3, nº 1, 1998, p. 16.
David John Doukas y William Reichel, Planning for Uncertainty, op. cit. p. 11.
Octavi Quintana-Trias, Por una muerte sin lágrimas. Problemas éticos al final de la vida, Flor del Viento, Barcelona, 1997, p. 173.
Larry VandeCreek y Deborah Frankowski, "Barriers that Predict Resistance to Completing a Living Will", Death Studies, vol. 20, 1996, p. 73.
Cf. Monique Ouellette, "Le testament de vie", en Guy Durand y Catherine Perrotin (eds.), Contribution à la réflexion bioéthique. Dialogue France-Québec, Fides, Cap-Saint-Ignace, 1991, p. 212.
David John Doukas y William Reichel, Planning for Uncertainty, op. cit., p. 49.
Paolo Cattorini, Cap. 3: "Direttive anticipate del malato. Pro e contro", La morte offesa. Espropriazione del morire ed etica della resistenza al male, Edizioni Dehoniane Bologna, Bolonia, 1996, p. 118.
Nancy M. P. King, Making Sense of Advance Directives. Revised Edition, op. cit., p. 136.
Diego Gracia, "Cuestiones de vida o muerte. Dilemas éticos en los confines de la vida", en Fundación de Ciencias de la Salud, Morir con dignidad. Dilemas éticos en el final de la vida, op. cit., p. 135.
David John Doukas y William Reichel, Planning for Uncertainty, op. cit., p. 42.
Robert M. Veatch, Cap. 5: "Deciding to Refuse Treatment. The Cases of Incompetent Patients", Death, Dying, and the Biological Revolution. Our Last Quest for Responsibility. Revised Edition, Yale University Press, New Haven, 1989, p. 108.
Cf. J.S. Janofsky, J.S. McCarthy y M.F. Folstein, "The Hopkins Competency Assessment Test. A Brief Method for Evaluating Patient's Capacity to Give Informed Consent", Hosp. Community Psychiatry, vol. 43, nº 2, 1992, pp. 132-136.
Nancy M. P. King, Making Sense of Advance Directives. Revised Edition, op. cit., p. 104.
Arthur S. Berger, When Life Ends. Legal Overviews, Medicolegal Forms, and Hospital Policies, Praeger, Westport, Connecticut, 1995, p. 47.
Jaya Virmani, Lawrence J. Schneiderman, Robert M. Kaplan, "Relationship of Advance Directives to Physician-Patient Communication", Archives of Internal Medicine, vol. 154, 25 de abril, 1994, p. 909.
Brendan M. Reilly, C. Richard Magnussen, James Ross, Jeffrey Ash, Louis Papa y Michael Wagner, "Can We Talk? Inpatient Discussions About Advance Directives in a Community Hospital. Attending Physicians' Attitudes, Their Inpatients' Wishes, and Reported Experience", Archives of Internal Medicine, vol. 154, 24 de octubre, 1994, p. 2299.
Sean R. Morrison, Elizabeth W. Morrison, Denise F. Glickman, "Physician Reluctance to Discuss Advance Directives. An Empiric Investigation of Potential Barriers", Archives of Internal Medicine, vol. 154, 24 de octubre, 1994, p. 2311,
Association pour le Droit de Mourir dans la Dignité, "Dossier: Le testament de vie", ADMD Bulletin Trimestriel, nº 69, septiembre, 1998, p. 4.
Terry J. Barnett, Living Wills and More. Everything You Need to Ensure That All Your Medical Wishes Are Followed, op. cit., p. 15.
Cf. Kent Davidson y Ray Moseley, "Talking with Patients about Advance Directives: The Role of the Primary Care Physician", en Chris Hackler, Ray Moseley, y Dorothy E. Vawter (eds.), Advance Directives in Medicine, Praeger Publishers, Nueva York, 1989, pp. 121-125.
Joseph J. Fins, "Advance Directives and SUPPORT", JAGS (Journal of the American Geriatrics Society), vol. 45, nº 4, abril, 1997, p. 520.
Steven H. Miles, Robert Koepp y Eileen P. Weber, "Advance End-of-Life Treatment Planning. A Research Review", Archives of Internal Medicine, vol. 156, 27 de mayo, 1996, p. 1066.
David John Doukas y William Reichel, Planning for Uncertainty, op. cit., p. 50
Terry J. Barnett, Living Wills and More. Everything You Need to Ensure That All Your Medical Wishes Are Followed, op. cit., p. 13.
Jiska Cohen-Mansfield, Beth A. Rabinovich, Steven Lipson, Adele Fein, Barbara Gerber, Shulamith Weisman y Gregory Pawlson, "The Decision to Execute a Durable Power of Attorney for Health Care and Preferences Regarding the Utilization of Life-Sustaining Treatments in Nursing Home Residents", Archives of Internal Medicine, vol. 151, febrero, 1991, p. 291.
Terry J. Barnett, Living Wills and More. Everything You Need to Ensure That All Your Medical Wishes Are Followed, op. cit, p. 16.
Steven Miles, Robert Koepp y Eileen P. Weber, "Advance End-of-Life Treatment Planning. A Research Review", Archives of Internal Medicine, vol. 156, 27 de mayo, 1996, p. 1066.
David John Doukas y William Reichel, Planning for Uncertainty, op. cit., pp. 50-51.
Margaret Pabst Battin, Cap. 2: "The Eclipse of Altruism: The Moral Cost of Deciding for Others", The Least Worst Death. Essays in Bioethics on the End of Life, Oxford University Press, Oxford, 1994, p. 54.
Ibid.
Ibid.
Ibid., p. 55.
Nancy M. P. King, Making Sense of Advance Directives. Revised Edition, op. cit., pp. 80-81.
Linda L. Emanuel, Ezekiel J. Emanuel, John D. Stoeckle, Lacinda R. Hummel y Michael J. Barry, "Advance Directives. Stability of Patients' Treatment Choices", Archives of Internal Medicine, vol. 154, 24 de enero, 1994, p. 209.
Cf. Jim Stone, "Advance Directives, Autonomy and Unintended Death", Bioethics, vol. 8, nº 3, 1994, pp. 223-246.
David J. Roy, John R. William, Bernard M. Dickens y Jean-Louis Baudouin, La bioéthique. Ses fondements et ses controverses, Renouveau Pédagogique, Saint-Laurent, Québec, 1995, p. 443.
Paolo Cattorini, Cap. 3: "Direttive anticipate del malato. Pro e contro", La morte offesa. Espropriazione del morire ed etica della resistenza al male, op. cit., p. 101.
Association pour le Droit de Mourir dans la Dignité, "Dossier: Le testament de vie", ADMD Bulletin Trimestriel, nº 69, septiembre, 1998, p. 5.
Hans-Martin Sass y Rita Kielstein, "Die medizinische Betreuungsverfügung in der Praxis. Vorbereitungsmaterial. Modell einer Betreuungsverfügung. Hinweise für Ärzte, Bevollmächtigte, Geistliche und Anwälte, Zentrum für Medizinische Ethik. Medizinethische Materialien, nº 111, octubre, 1996, p. 10.
Cf. Paolo Cattorini, Cap. 3: "Direttive anticipate del malato. Pro e contro", La morte offesa. Espropriazione del morire ed etica della resistenza al male, op. cit., pp. 130-131.
Nancy M. P. King, Making Sense of Advance Directives. Revised Edition, op. cit., p. 103.
Ibid., p. 106.
Giacomo Perico, "'Testamento biologico' e malati terminali", Aggiornamenti sociali, nº 11, 1992, pp. 680-681.
Cf. ibid., p. 685.
Cf. Nancy M.P. King, Making Sense of Advance Directives. Revised Edition, op. cit., pp. 226 y s.
Ibid., p. 228.
Cf. David C. Thomasma, "Advance Directives and Health Care for the Elderly", en Chris Hackler / Ray Moseley / Dorothy E. Vawter (eds.), Advance Directives in Medicine, Praeger Publishers, Nueva York, 1989, pp. 104-105.
Nancy M.P. King, Making Sense of Advance Directives. Revised Edition, op. cit., p. 228.
Terry J. Barnett, Living Wills and More. Everything You Need to Ensure That All Your Medical Wishes Are Followed, op. cit., p. 13.
Cf. Lawrence J. Schneiderman and Nancy S. Jecker, Cap. 4: "Families who want Everything Done", en Wrong Medicine. Doctors, Patients, and Futile Treatment, The Johns Hopkins University Press, Baltimore, 1995, p. 64.
Paolo Cattorini, Cap. 3: "Direttive anticipate del malato. Pro e contro", La morte offesa. Espropriazione del morire ed etica della resistenza al male, op. cit., p. 121.
Joanne Lynn y Joan M. Teno, "Advance Directives", en Warren Thomas Reich (ed.), Encyclopedia of Bioethics. Revised Edition, MacMillan Library Reference USA / Simon and Schuster MacMillan, Nueva York, 1995, p. 574.
Cf. Joanne Lynn, "Why I Don't Have a Living Will", Law, Medicine and Health Care, 19:1-2, 1991, pp. 101-104.
Hans-Jürgen Rieger, "Patiententestament", Lexikon des Arztrechts, Walter de Gruyter, Berlín / Nueva York, 1984, p. 623.
Ibid., pp. 623-624.
Carlos María Romeo Casabona, "Los testamentos biológicos y el rechazo de los tratamientos vitales", en Savador Urraca (ed.), Eutanasia hoy. Un debate abierto, op. cit., p. 268.
Wilhelm Uhlenbruck, "Patiententestament", en Albin Eser, Markus von Lutterotti y Paul Sporken (eds.), Lexikon Medizin Ethik Recht, Herder, Friburgo, 1989, p. 786.
The Hastings Center, "An Alert and Incompetent Self. The Irrelevance of Advance Directives", The Hastings Center Report, vol. 28, nº 1, enero-febrero, 1998, p. 28.
Rebecca Dresser, "An Alert and Incompetent Self. The Irrelevance of Advance Directives. Commentary", The Hastings Center Report, vol. 28, nº 1, enero-febrero, 1998, p. 29.
Alan B. Astrow, "An Alert and Incompetent Self. The Irrelevance of Advance Directives. Commentary", The Hastings Center Report, vol. 28, nº 1, enero-febrero, 1998, p. 30.
Rebecca S. Dresser, "Advance Directives, Self-Determination, and Personal Identity", en Chris Hackler, Ray Moseley y Dorothy E. Vawter (eds.), Advance Directives in Medicine, Praeger Publishers, Nueva York, 1989, p. 160.
Ibid., p. 165.
Allen E. Buchanan y Dan W. Brock, Deciding for Others. The Ethics of Surrogate Decision Making, Cambridge University Press, Cambridge, 1990, pp. 184-185.
Nancy M. P. King, Making Sense of Advance Directives. Revised Edition, op. cit., p. 107.
John La Puma, "Are Advance Directives the Answer for the Frail Elderly?", en Ellen Olson, Eileen R. Chichin, Leslie S. Libow (eds.), Controversies in Ethics in Long-Term Care, op. cit., p. 5.
Ibid.
Cf. Jim Stone, "Advance Directives, Autonomy and Unintended Death", Bioethics, vol. 8, nº 3, 1994, pp. 223-246.
Danielle Blondeau, "Testament de vie", en Gilbert Hottois y Marie-Hélène Parizeau (eds.), Les mots de la bioéthique. Un vocabulaire encyclopédique, op. cit., p. 335.
Octavi Quintana, Por una muerte sin lágrimas. Problemas éticos al final de la vida, Flor del viento, Barcelona, 1997, p. 162.
A. A. Howsepian, "Are Advance Directives an Advance?", Ethics and Medicine. An International Christian Perspective on Bioethics, vol. 14, nº 2, 1998, p. 34.
Nancy M. P. King, Making Sense of Advance Directives. Revised Edition, op. cit., p. 82.
Ibid., p. 83.
Ibid., p. 84.
Monique Ouellette, "Le testament de vie", en Guy Durand y Catherine Perrotin (eds.), Contribution à la réflexion bioéthique. Dialogue France-Québec, op. cit., p. 218.
Ibid.
Luke Gormally, "The Living Will: The Ethical Framework of a Recent Report", en Luke Gormally (ed.), The Dependent Elderly: Autonomy, Justice, and Quality of Care, Cambridge University Press, Cambridge, 1992, p. 65.
A. A. Howsepian, "Are Advance Directives an Advance?", Ethics and Medicine. An International Christian Perspective on Bioethics, vol. 14, nº 2, 1998, p. 40.
David J. Roy, John R. William, Bernard M. Dickens y Jean-Louis Baudouin, La bioéthique. Ses fondements et ses controverses, op. cit. p. 443.
Cf. Paolo Cattorini, Cap. 3: "Direttive anticipate del malato. Pro e contro", La morte offesa. Espropriazione del morire ed etica della resistenza al male, op. cit., p. 119.
Ibid., p. 24.
Luke Gormally, "The Living Will: The Ethical Framework of a Recent Report", en Luke Gormally (ed.), The Dependent Elderly: Autonomy, Justice, and Quality of Care, op. cit., p. 66.

 

 

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